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Directory Listings National Organization for Rare Disorders, Inc. National Organization for Rare Disorders is dedicated to helping people with rare, orphan diseases. Rarediseases.org contains information on the prevention, treatment and cure of rare diseases. http://www.rarediseases.org/ - profile Sotos Syndrome Support Association Provide a social support environment for professionals and families of individuals affected by Sotos Syndrome so they can meet, exchange ideas and help one another cope with the condition http://www.well.com/user/sssa/ - profile |
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